His journey

Because i lived so far from the hospital, they put me up at the Ronald McDonald House, so that way i could spend all my time with him. Bill came up for 2-3 days a week due to work. Little Billy did have to have surgery, they had to close the heart valve that normally closes once a baby takes its 1st cry, but because he needed help breathing he had tubes in his mouth, so he didn't get to. So they had to perform heart surgery on him, he had that done on August 10th, that was such a scary day. It took so long for then to do his surgery because he ended up getting sepsis and they had to put him on antibiotics to get it gone, so that's why it took so long fro him to get this done. But he made it thru it like a little champ. His lungs cleared up and he got moved to a different level of the NICU and we were getting ready to take his tubes out and hear him cry for the 1st time. At this time he was eating my breast milk and i got to hold him 2 times. They called it KANGAROOING, that's when they put him on my bare chest for a couple hours and he gets to feel my heartbeat and my warmth and they say it helps them. i got to do it twice, it was so amazing! The nurses told me that he knew when i was there, he even opened his eyes and would look at me. When i would open his little door to touch him he would always reach for my finger and would hold it so tight, he also liked to push his feet up against my hand. My husband called him stretch, cause when they pulled him outta of me he was stretching and it looked like "stretch armstrong", the nurses called him "Toe Head" cause his hair was so blonde. He was doing so good, they told us he was just shy of 4 lbs and he was now breathing our air and we would most likely be going home soon! We waited to hear those words for so long! We were so excited! At this point, I've been in the hospital for 15 weeks and so ready to bring my boy home. He was 31 weeks 6 days (gestational age) But on Saturday August 15th our world changed forever....